I have been very unwell for several weeks now. I have had heart MRI ,CT scans, xrays, blood tests etc,etc . The lymph nodes in my neck are swollen, I have very severe pain in my neck and head and none of the medication has enabled me to be free from pain. I am familiar with these symptoms as I had them for several weeks before I was diagnosed with neurosarcoidosis in 2007. These symptoms preceeded the acute stage when I became unable to walk and also had a facial palsy. I am extremely worried that this will happen again but the consultants will not give me steroids until they have biopsied the largest lymph node in my neck. It has been 6 weeks since this was decided and I am still waiting. They say that there is a possibility that I also have lymphoma and this is the reason for removing the node. I am frightened as surely if this is a possibility then it should have been done sooner. I saw the consultant again last week and he said that I would hear from him within 48 hours.............I am still waiting, in continual pain and worried..........